The Life of Riley Living with Duchenne Muscular Dystrophy
About
About one out of every 5,000 boys has Duchenne, and about 20,000 babies worldwide are born with it each year. Duchenne primarily affects boys and affects all races and cultures. Parent Project Muscular Dystrophy (PPMD) estimates that about 15,000 young men, as well as a few young women, live with Duchenne today in the United States.
We were told Riley may need a wheelchair by the time he's 10 years old and will be dead by 17. We needed to focus on accepting this reality.
The Life of Riley: Living with Duchenne Muscular Dystrophy, Through A Mother's Eyes, encapsulates the extraordinary life of someone who has faced immense challenges at a young age. Riley never gave up or lost hope that a way would be found to keep him going. It has been 31 years in the making because it took this long for Riley to allow his story to be written.
Praise for this book
Customers find the book uplifting, with one describing it as an inspiring book of hope and love. They appreciate its informative content, with one customer noting how it provides insight into Duchenne Muscular Dystrophy. Customers praise its resilience, with one review highlighting the unbreakable bond between family members.